A Self-Advocate’s Guide To Dental Health
Last Revised: May 2025
IHPP guides are for educational purposes only. The illustrations and information about anatomy are for learning about the human body, health conditions, and preparing for appointments. These guides should not be used to diagnose or treat any health problems. These guides are not a replacement for seeing a licensed medical professional. Please talk with your healthcare provider if you have questions or concerns about your health.
Transcript:
A Self-Advocate’s Guide to Dental Health
Created by the Vermont Developmental Disabilities Council
This guide helps you understand how to take care of your mouth, teeth, and gums.
Good dental health keeps your whole body healthier and helps you feel and look good.
What is dental health?
Dental health is how healthy your mouth is — including your teeth and gums.
Plaque is a sticky layer of germs that builds up on teeth and causes tooth decay.
Poor dental health can lead to infections that affect your entire body.
People with disabilities often do not get good dental care — but everyone deserves it.
Why is dental health important?
A healthy mouth = a healthy body.
How do you take care of your mouth?
- Brush your teeth twice a day for 2 minutes 
- Use a water pick or electric toothbrush 
- Floss daily between teeth 
- Use mouthwash (choose alcohol-free if you have dry mouth) 
- Drink water often, especially after eating 
- Visit the dentist every 6 months 
- Avoid smoking, chewing tobacco, and sugary drinks 
If your mouth feels sore or different, call a dentist.
Watch for warning signs:
- Toothaches or pain when chewing 
- Bad breath 
- Bleeding gums 
- Sensitivity to hot/cold 
- Jaw pain or grinding 
- Dentures that don’t fit 
- Loose teeth 
If brushing is hard, try a toothbrush with a longer or bigger handle.
Going to the dentist
There are 2 reasons to go:
- Prevention: To keep your teeth clean and healthy 
- Repair: To fix anything that hurts or is broken 
Who you might meet at the dental office:
- Dental Hygienist – Cleans teeth, may take pictures (x-rays) 
- Dentist – Checks teeth and fixes problems 
- Oral Surgeon – Specializes in more complex dental issues 
Tools they may use:
- Drill 
- Mirror 
- Pick 
- Suction tool 
- Water rinse 
- Dental floss 
Tips for a successful visit:
- Arrive 15 minutes early 
- Bring a support person 
- Bring a list of medications 
- Know your medical and dental history 
- Ask why and how a procedure will be done 
- Request a cost estimate before treatment 
- Write down any questions you have 
What if you feel scared to go?
- It’s okay — many people do! 
- Dentists want to help, not hurt 
- You have a right to ask questions and understand your care 
Comfort strategies:
- Breathe deeply 
- Wear headphones or sunglasses 
- Listen to music 
- Ask to watch a movie 
- Ask for medicine to help with pain or anxiety 
- Ask for a tour of the office ahead of time 
- Bring a support person into the room 
Types of medicine that can help you relax:
- Pills for anxiety 
- Laughing gas (nitrous oxide) 
- Sedation (to help you sleep) 
How to find a dentist
It can be hard — but there are ways:
- Ask friends or family for recommendations 
- Contact your State Department of Health 
- Get a list from Medicaid or your insurance 
How to pay for dental care
Dental work can be expensive. You can pay by:
- Private insurance 
- Out-of-pocket 
- Medicaid 
- Grants or state programs 
- Online fundraising (like GoFundMe) 
Vermont resources include:
- One-time agency funding 
- Dental schools & community health centers 
- CapStone for Teeth 
- DDSD Dental Fund 
My Dentist (for your next visit)
Name:
 Phone Number:
 Address:
I want to ask about:
 (Write your questions or concerns here)
What is The Inclusive Healthcare Partnership Project?
The Inclusive Healthcare Partnership Project (IHPP) believes everyone should have tools to manage their own health.
IHPP Goals:
- Create easy-to-understand health materials for people with developmental disabilities 
- Help healthcare providers communicate better with neurodiverse patients 
Last revised: January 2025
Learn more at: http://www.ihppvt.org
Supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS).
Sources:
- American Academy of Pediatric Dentistry. (2023). Management of dental patients with special health care needs. Pediatric Dentistry, 337-44. https://www.aapd.org/media/Policies_Guidelines/BP_SHCN.pdf 
- National Institute of Dental and Craniofacial Research/National Institute of Health (US); [updated 2023 August]. Developmental disabilities and oral health. https://www.nidcr.nih.gov/health-info/developmental-disabilities. 
- Potter, C. N., Wetzel, J. L., & Learman, K. E. (2019). Effect of sensory adaptations for routine dental care in individuals with intellectual and developmental disabilities: A preliminary study. Journal of Intellectual & Developmental Disability, 44(3), 305-314. 
- Reynolds, K., Chandio, N., Chimoriya, R., & Arora, A. (2022). The Effectiveness of Sensory Adaptive Dental Environments to Reduce Corresponding Negative Behaviours and Psychophysiology Responses in Children and Young People with Intellectual and Developmental Disabilities: A Protocol of a Systematic Review and Meta-Analysis. International Journal of Environmental Research and Public Health, 19(21). https://doi.org/10.3390/ijerph192113758. 
- Southwest Autism Research and Resource Center (SARRC). (2023). Autism dental information guide for dental professionals. https://autismcenter.org/wp-content/uploads/2023/02/Dental-Information-Guide-for-Dental-Professionals-English-Version.pdf 
 
                        